Health and educational awareness programs for hereditary blood diseases. Preparing field research and scientific surveys. Holding seminars, lectures, workshops, and circulating health magazines. Follow up on patients’ needs.
Research the needs of patients and their families to cope with the disease. Besides educating them about the best way to live with the disease the team needs to find ways to spread mental awarness and create engaging activites.
To be a link between the NGO, it’s members and the public face of the organization in digital and print media. Organize recreational programs and social gatherings for patients and their families.
To increase financial competency, maintain costs and look for new funding channels through various fund-raising or crowd-sourced events.
Training members in English, making them computer literate and other soft skills courses to enable job placement.