Hemophilia connect is an application for patients with hemophilia A and the main goal is to virtually connect patients to their care team. This application will help patients record the symptoms they do not recall at
clinic visits, and accordingly help physicians to readily inform better treatment decisions to improve treatment outcomes. The application aims at improving patients’ adherence to treatment, helping patients overcome under-reporting of bleeds and symptoms, offering a trusted educational resource, and ensuring proper management of the disease especially the encountered breakthrough bleeds.
The Bahrain national hereditary anaemia society held the general assembly elections for the board of directors of the association on Saturday, 4/8/2018, in the presence of 150 members of the association and their families.
Celebration of World Thalassemia Day 8 May
The National Association of Hereditary Blood Diseases celebrated World Thalassemia Day, which falls on May 8, with several activities
The activities of the Society on the occasion of the International Day for sickle cell anemia.
The National Association of Hereditary Blood Diseases celebrates the World Day for Sickle Cell Anemia .